Tuesday, December 25, 2007
Merry Christmas!
Good morning and Merry Christmas to all our family and friends! I told Chad it was his job to write the blog entry today, but I will do a quick one and we'll have pictures later. We are at my sister, Jean's house with her family and our parents this year. When the boys are up they will open presents and then we will start cooking our Christmas dinner.
For me it's been about the same. I'm working a little and tolerating that ok, except for the lights. I had some testing to look at the nerve function on my right side because of the dizziness and hearing loss. It showed some damage to the Right vestibular nerve. I haven't had a follow-up with the doc that ordered the test yet, but I'm assuming that's from the radiation and I am praising and believing God that it will be temporary! For those of you that haven't seen me in person, I've lost half the hair on my head (fortunately I had very thick hair to start with and a great girl to cut my hair) and you can hardly tell. Also, one day, my eyebrows fell out...that was strange because it was after radiation was over. I have to draw them in. Yes, sad and funny, but true. Looks better than going without.
I was the first one up this morning! I even beat my dad...that's a big deal for those of you who know my family. He's up now and has the coffee started. Jakey's awake, but the action won't start until Benny wakes. My husband just came up from the basement. I told him he was on for a blog entry later today.
May you all have a blessed day and a very Merry Christmas! And may we not forget that today we celebrate Jesus' birthday!
Love,
Laura
Thursday, December 13, 2007
Crashed Computer...
My head has been feeling pretty good, rarely headaches. Still dealing with dizziness, fatigue, ringing and hearing loss on that side. I've started physical therapy to help my brain habituate to the dizziness. I have some more testing for the ringing and hearing loss. Our hope is that it's just from inflammation from the radiation and will resolve with time and more healing. I worked a little this week to test it out. Did ok, just had to take a long nap! The residents didn't make too much fun of me when I had to wear sunglasses under the fluorescent lights! I would prefer to work in candlelight...does anyone know of a hospital like that?
Chad's parents are coming this weekend for a visit since we won't be able to go back to Kansas this year. Today I was able to go with my friend Nicole and son Gibson to the Meijer Gardens to see the trees. It was nice to get out of the walls of the house and of course to visit with a friend. May you all have a blessed holiday season and a very merry CHRISTmas. May we not forget the reason we celebrate--the birth of our savior Jesus.
Please continue to pray for the above symptoms to go away and for complete and total healing. My follow-up MRI is January 3. Pray that there is absolutely no tumor, no scar tissue, and no inflammation. Blessings and a very merrry Christmas,
Laura
Monday, November 19, 2007
Thanksgiving
First, God is a loving and faithful father, being there whenever you need Him. A friend of mine mentioned that the intimacy that we experienced with Him while in Arkansas must have been extraordinary, to say the very least. He was right. It was so powerful, that I cannot put it into words. Ever since, he has been there with peace and serenity whenever we called on Him.
Second, the power of family and friendship and all the love and support so many of you have provided over the past months is truly humbling. Personally, I have been guilty of not giving these relationships the weight and appreciation they deserve, and I pray that changes from this point going forward throughout the remainder of our lives. Understanding and supportive family, friends tripping over themselves to do whatever they can, it's been amazing.
Finally, I feel so blessed to know that Laura is going to walk out of the treatment room in a few moments, and she will not have any more treatments to incur. She has been so strong and faithful throughout this time, I have been so proud. You see, we have always joked that she is a delicate princess, but the day we arrived home from the hospital after finding out about the tumor, I held her in our living room while she was crying. God put it on my heart to change her perspective, that she is a strong princess, with a delicate head. Those that have supported us throughout this process can testify that she took that to heart.
Therefore, I am thankful for family, friends, health, healthcare, the Lord's love and faithfulness, prayer, and pain. Without it all, we would not be where we are now. Thank you all for all you have done, whether it be a silent prayer while you are in the middle of something else, or breaking into our house to mow the lawn awaiting for the police to arrive. We love you all and know you have been a reflection of His love throughout this time. I/we could not have gotten through this without you.
God Bless You All,
Chad
Thursday, November 15, 2007
The Final Stretch
At times the frustration gets to me with the continuing symptoms of nausea, dizziness, fatigue, etc. My mom reminded my of one of my favorite verses since I was a child, which is very fitting right now: Isaiah 40:31 "But those who wait on the LORD shall renew their strength. They shall mount up with wings like eagles, they shall run and not be weary, they shall walk and not faint." I am continuing to wait on Him and continuing to have faith for my complete healing. We are in the final stretch and will continue to keep you posted. Thank you all for your continued support and prayers.
Better Day
Thank you all for the notes and prayers, they were felt. Laura started feeling better yesterday afternoon following a big dose of prayer and a new nausea medicine. She is doing well today, taking good naps and excited there are only two treatments left. Monday at 9 AM will be a happy time, no doubt. Thank you all for your support, it means so much.
God Bless,
Chad
Wednesday, November 14, 2007
Prayer Request
If you could say a prayer for Laura to receive healing, comfort, and peace during these next few days, I would be grateful. It is difficult watching your wife feel so bad it brings her to tears as it did this morning. It's a helpless feeling, wishing I could shoulder that burden if even for a short while until the treatments are finished. Laura has been so strong throughout this process, a testiment to her faith in God. Thank you all for your prayers, support, and acts of service throughout this time. God has shown himself through so many people in our lives, even those I/we don't know, that it humbles me to the core when I allow myself to take it all in.
God bless you all,
Chad
Sunday, November 4, 2007
A bump in the Road
All that being said, please pray for my dizziness to resolve. I am obviously unable to drive when I can't turn my head without getting dizzy. Also pray that my meds get straightened around. The more I'm on, the more possible side effects. For those who know me, you know I used to not even like taking Tylenol or Motrin for a headache. This has been a big change for me to have to carry pill bottles around with me everywhere.
Sorry there wasn't more good news for this post. I am in the last 1/3 of my radiation treatments! That's something positive!
Monday, October 29, 2007
Machine Broken today
I feel so blessed everyday in how God has carried me through this time. Very rarely have headaches...unless I get too stimulated, have had no seizures since surgery (please continue to pray that I never have another), nausea is better. I'm starting to lose more hair, so pray that stops...I need it on my head to keep me warm. Thankfully I had lots of thick hair to start with. Praise God for that! I'm chosing to look at all the blessings I've had through this time. It could have been a lot different.
Chad had a "suprise" birthday party for me on Saturday. I figured it out, but still a suprise in many respects. It was lots of fun, but took a long nap after. Mom came in and made me the cake she always did when we were kids...except in gluten-free form. Delicious!
Have a great day, everyone. Thanks for checking in on us. This is the fancy machine that keeps breaking...and what it looks like when they put me in my mask. I had no idea until I was a patient.
Wednesday, October 24, 2007
Halfway Done!
Not many bad radiation side effects. Noticing some significant hair loss, but to be expected. The nausea is getting much better. I've had a return of some headaches...not terrible...I can definitely deal with them.
Thank you for your continued prayers!
Monday, October 22, 2007
Jib Jab video
Sunday, October 21, 2007
Driving Home
I just thought it was neat because Chad got one of those Wi-Fi cards fpr work, and I can be on the internet whil he's driving. We are still on our way home from Detroit. It's 10pm, so it'll be a late night and a very early morning with radiation at 7:36am. Good thing I got a nap at Neethi's parents' today.
So I guess the latest is I'm going to attempt to start working my way back toward work a little. I will have to start with my babies at the hosptial--as directed by my neurosurgeon...and only a half day a week at first. I will be seeing the employee health doc tomorrow, which is the start of the process. I will keep you posted on my progress.
Please continue to pray for complete healing, not more nausea, no more seizures ever! And no need for chemo ever!
Tuesday, October 16, 2007
Big News!!
- Young
- Total resection (removal of tumor)
- Mostly Grade 2 (benign) with spot of Grade 3 (beginning malignancy)
- Chemo's affect on this type of tumor...
...the doctor recommended that we monitor through MRI scans before jumping into chemo! In other words...NO CHEMO! There has not be any definitive proof of chemo's improvement on this type of tumor and is more than anything a safety measure for tumors with Grade 3.
If the tumor had not been removed, it would be a different story. If the tumor was a Grade 3 with spots of Grade 4 (worse), it would be a different story. If Laura had this happen later in life, it would be a different story. All in all, once the radiation treatments are finished on November 15th, we will officially be "on the other side" of this experience. Praise God!
We are obviously very excited and relieved to learn of this, and the doctor was fantastic to work with throughout the time today. It is such a relief, though it is incumbent on us taking care of ourselves (I am in this too), meaning we are back on the vegan train to make sure there is only natural stuff going into her system due to the studies of the effect of food on cancer. Happy to do it.
Friday, October 12, 2007
2 days off!
Still battling the nausea. Getting a little better, but still problematic. I'm taking plenty of compazine, which still sometimes doesn't help. Keep praying for that to go away and for my total healing. I'm not planning on having chemo. They would have to really convince me and I don't think that will happen. Total healing is the only option. The Professor told me he got it all and I am convinced that my healthy diet with some alternative treatments will take care of it with the radiation. When I'm getting radiation, I'm picturing that space invaders video game killing any last tumor cell that might possibly be there. Thanks for your prayers. Love,
Laura
Thursday, October 11, 2007
Treatment cancelled today
Laura
Wednesday, October 10, 2007
Appointment cancelled
Laura
Tuesday, October 9, 2007
Appointment with neuro-oncologist today
Radiation is going well...no problems with it, so I can't complain. No more need for any pain meds for headaches, praise God! Our prayer still stays the same: my total healing without any further treatment. Thsnk you to all of you, my friends and family, for staying with me through this adventure and growth period. Love,
Laura
Wednesday, October 3, 2007
Prayer Request
Chad hasn't worked out the calendar yet, so don't think you can view it on the blog yet. We'll post when it's up and running. Thanks to all.
Tuesday, October 2, 2007
Day 2 of Radiation
I have been on sabbatical from the blog for a while, but now that I am back in a hospital, I thought it would be a great time to catch up with everyone. It's such a blessing to know that the recommended treatment for Laura's radiation (IMRT) is not only available in Grand Rapids, but Lack's Cancer Center actually offers the next generation of the treatment (IGRT...I think). The difference is that IMRT focuses radiation on the area surrounding the former tumor within a centimeter, while IGRT can target within a millimeter or two. Grab a ruler and you will be as amazed as I am that this is so precise...therefore, in my own mind, that means that since less normal tissue is being radiated, there is less likelihood for Laura to experience any side effects such as fatigue, nausea, and whatever else could be affected by radiation hitting your brain...which is difficult for me to wrap my head around.
Laura is out already, it only takes about 30 mins as they run a CT scan before every treatment to ensure they are hitting the appropriate target. Still, 30 mins is not long when you have wireless and a great little coffee shop by the entrance. We are so blessed to live in Grand Rapids, where so many have shared their wealth to bring top flight health care to our backyard.
Laura's comment coming out..."Am I glowing?" Funny girl she is. Lack's is really nice, even free valet parking for radiation patients. Yesterday was Day 1 of 33 straight days of radiation, which she has yet to feel anything from, aside from "a little tickling as if there was a little animal running around up there." Only Laura.
That being said, so many have asked how they can help and we now have something that will require some help. Laura can't drive, but needs to be driven to and from Lack's on a daily basis until Nov. 7th. On as many days as I can, I will take care of it. However, with juggling the business and this, there will be days that will not allow me to take her. I am going to attempt to attach a Google calendar for people to see and volunteer for the times of the appointments, and we would welcome the help. The only catch is that her appointments will be at 7:36 every morning starting next week. Therefore, there will likely be mornings where I can drop her off but cannot stay, so she will need picked up. Did I mention the great little coffee shop at the entrance? Feel free to call Laura on her cell if you would like to volunteer for any days. Thanks in advance to everyone that pitches in, we are blessed to have so many generous friends.
Sunday, September 30, 2007
A Visit from Neethi, Jayes & baby Shaan
A Long, Overdue Update
How could that face not be therapeutic!
Isn't he so cute! Handsome little guy! Well, here is the update as I know it on me...
I've been doing pretty well. Headaches haven definitely gotten better. My incision/scar is continuing to heal, more each day. I was at a church conference this weekend with my mom. I got a message from the rad-onc's office that they want me to come in form my first radiation treatment at 11am on Monday. He originally said they have to do a second set-up before the first treatment, so the first actual treatment may not be until Tuesday. I'm a little confused, so we'll keep you posted. Please pray for no side effects--that all normal brain tissue will be spared, no fatigue, no hair loss, no skin changes, etc.
I haven't seen the neuro-onc at U of M again, but I got a call back from her nurse. We finally have all 3 path's back. I haven't seen the reports myself, but from what I've been told on the phone, none of them show grad 4 cells. Praise God! The bulk of the tumor was grade 2, with some grade 3 changes. Tumors are treated like the highest grade of cells present, so they call it a grade 3 (anaplastic) astrocytoma. Dr. Rogers at U of M is recommending radiation initially without chemo, but chemo following radiation. I haven't gotten to speak with her yet, and of course, it's ultimtely our decision. Pray that they do not feel chemo is necessary.
I think I covered it all. That's all I know for now. If there's something new after apppointments the next couple of days, I'll reupdate. Thank you for your continued support! Love,
Laura
Sunday, September 16, 2007
It's Been Awhile....
The headache is much better! I am no longer taking pain medicine around the clock. Only when I need it now, which is a big improvement. God is healing me day by day. Still no further word on other path reports. It's a waiting game I guess.
I switched radiation-oncology doctors. We really liked the original one....super nice guy, but they didn't do the type of radiation that Dr. Yasargil recommended. We decided to go with his recommendation, which meant we had to switch doctors and hospitals. I have my initial consult with the new radiation-oncologist tomorrow afternoon. Please pray for that appointment.
I had a nice day Friday at my friend Nicole's. She always gives me an invitation to spend the day at their house for a change of scenery. She even has a guest bedroom ready for my for my nap. And believe me, she makes sure I get a nap and a walk. As she puts it, she "mother hen's me"! Very funny, and true, in a very good way.
Yesterday we headed to Lansing for MSU football. Still no game for me, but Chad goes with the family. I stayed at my parent's with Jean and Jakey, where it was quiet and warm.
The most exciting thing in the last week was that my sister Marie had a beautiful big baby boy. An emergency c-section brought Matthew into the world weighing 9lbs 9oz & 22 1/2 in long. Mom and baby are both doing well. Yippee!
Please continue your prayers for my total healing and for low grade path reports from the next 2 opinions and no need for chemo. Thank you. Love,
Monday, September 10, 2007
Alisha and Jean Left; Good News Today!
We went to see Dr. Spencer, the neurosurgeon in town that is following me after surgery. I started having some funny swelling on the left side of my face, neck, jaw, ear over the last couple of days. Less concerning since it's the side opposite the side of the tumor, but still something worth checking out to rule out an infection. I started thinking maybe it just had to do with the fact that I'm only laying on my left side, and everything is draining that way, so all the swelling is going down. He told us that this is a very common reaction post-op for my type of tumor resection...an imbalance in the autonomic nervous system that leads to swelling...which would also explain the swelling I've had in my left leg, which sent us in for a venous doppler late one night last week after seeing the neuro-oncologist at U of M who insisted I have a doppler that night because of the swelling and some leg tenderness. The doppler was obviously negative. Thank you Lord!
While we were with Dr. Spencer today, he asked us if we had seen the pathology from UAMS. We told him we hadn't actually seen it, but that many people had told us what it said, and that we were confused because we had been told many different things. Good news from that conversation! The majority of the tumor is a grade 2 (benign) with some portions being grade 3. The confusion was in how the pathologist wrote the report. It was written 3/4. But there is no in between. There are certain features microscopically that make it a 3, and certain features that make it a grade 4. It was very specifically stated that there was no necrosis in my tumor, which is what it takes to make it a grade 4. Praise God!
We are still waiting for the pathology report from Johns Hopkins and from U of M. After that, the neuro-oncologist will be able to make a better recommendation. However, after the explanation today, Chad and I are much more hopeful that chemo will not be needed. It's when a tumor is grade 4 that chemo is insisted upon. It's more ify with grade 3.
I have an appointment with the radiation -oncologist tomorrow for more preparatory work for radiation. No treatment yet. Please continue to pray for my appointments and for the further pathology that is yet to come back. Also continue to praise God with me for answered prayers and good news...of a total tumor resection and an low grade tumor! Thank you all for your continued support. We will continue to keep you updated.
Saturday, September 8, 2007
Alisha's Kids
Alisha and Lauren are here!
Headaches are definitely getting better! Praise God! I made the mistake yesterday of trying to go the whole day without pain meds because of some othe side effects of those types of meds. I ended up having to take some last night. Chad said, you know honey, you probably shouldn't just go cold turkey off of that, don't you think? Funny how things that are common sense when you're the doctor aren't so much when you're the patient.
For those of you that have been asking, no final path report yet, so no final treatment plan has been proposed to me. And no, I did not have my first radiation treatment. I met with the radiation-oncologist for a consult, but there's quite a bit of planning that has to happen before the first treatment. That's what I know for now. Thanks again for all your support and prayers...so much appreciated.
Sunday, September 2, 2007
Jakey 8 months
Jennifer
Friday, August 31, 2007
Visitors
Wednesday, August 29, 2007
Phone Calls
Tuesday, August 28, 2007
Monday, August 27, 2007
If you are wanting to cook...
Here are some websites for gluten-free recipes that might be helpful:
http://www.csaceliacs.org/recipes.php
http://members.ozemail.com.au/~coeliac/det.html
http://www.celiac.com/st_main.html?p_catid=20
Some things that I have learned to avoid since trying to live gluten-free:
distilled vinegar (balsamic and red wine are fine)
maltodextrin
carmel coloring- did you know Coca-Cola has gluten?
artificial vanilla flavoring
"spices"- generalized on labels
wheat-free doesn't mean gluten free (I know, right?)
If you avoid pretty much all salad dressings and marinades, that is usually a good idea. People at stores just don't know or understand gluten-free unless you go to Harvest Health.
Please don't feel that this is necessary, but I wanted to provide some help for those people that "show their love" through food.
Laura's headache is still an issue, though she is now officially "regular" after I threatened another supository Saturday morning. Thank you for all of your prayers, flowers, and support; it has been amazing. Talk to you soon.
Saturday, August 25, 2007
Farmers Market
My headache is getting better each day, please pray that it goes away completely...I'd like to not have to take anything for pain. I'm sleeping well, which is a huge blessing when trying to heal. I just got off the phone with my dear friend Neethi...we are stuck on opposite sides of the state from each other, and neither of us are allowed to drive to see the other...me because of the driving after having seizures rule, and she because she is 9 months pregnant and could go into labor any time! I told her she just can't have a baby that weighs more than 10 lbs. because I'm not allowed to lift any more than that after surgery. For those of you that know Neethi, that's just funny, because she's petite. She said she'd cry if she has a baby that weighs more than 7lbs, let alone 10. Ohhh, how I wish I could be with her right now!
Thank you all for your continued prayers and posts! It's so awesome to feel this loved! Chad is making me dinner right now. He's concerned about my getting enough protein to regain my strength, so he's grilling filets, which is not a common occurrence here in our mostly vegetarian home. For those of you that know me well, you won't be suprised by the pint of mint chocolate chip ice cream waiting for me in the freezer...already partially eaten. I know, for those that know me really well, you're suprised it's not a half-gallon!
Again, visitors welcome, as long as I'm home. Love to you all,
Friday, August 24, 2007
Ahhh OMM!!
I have some of my best friends in the world coming to see me in the next couple of weeks and I am so excited!! Thanks you guys! It makes Chad feel better to have someone with me at home...he doesn't like me here by myself, but there's not much we can do about that...and he has to work and I'm not allowed to yet.
For those of you wondering what the next step is...that will be radiation starting the first week of September. The Professor said no chemo...just radiation, that we will be able to do here in Grand Rpids, thankfully. Also, I will remain on seizure medicine for at least 6 months until they start to try to wean me off of that
The headache is continuing to get better; however, I still need quite a bit of pain medicine, which I'd just as soon not take. Thank you for the continued prayers for no more headaches or seizures, for the ucoming radiation--that it gets every last nasty cell that may be lingering in there, for my incision to heal quickly so I can shower and wash my own hair...those little things we take for granted!
Thank you to everyone who has been sending beautiful things to the house--flowers, edible arrangements, etc. It's all wonderful! Keri, Denise gave me a hug from you today! I would welcome visitors anytime...just call first so you know I'm home...though odds are good I will be! Love you all,
Thursday, August 23, 2007
Home Sweet Home
Funny stuff...Laura fell asleep in the plane with some water still in her mouth and woke up when it spilled down her shirt....and then asked me tonight what time I wanted to go to church tomorrow morning...then repeated the question three times as I wasn't sure I was hearing her right. Laura didn't even bother taking off her doctor-recommended white support hose to eat at Bonefish...she was THAT hungry....and a little stoned on meds.
Just to prepare those who visit, Laura's face is a little weak on the left side, so her smile mostly exists on her right side. She can smile symmetrically, but she has to think about it. Nothing to worry about per the Professor, it is the ONLY sign of weakness her entire body has shown, quite a miracle. I think Bruce was having the same issue I have had with her looking like she went off on a vacation and came back with a scar instead of a tattoo.
If people are planning on asking a lot of life question, be prepared for us not having a lot of answers. The fact that two weeks have passed in minutes, and Laura is laying next to me...catching flies with her mouth wide open no less...is a miracle that can only be understood by the big guy Himself. Frankly, neither of us can wrap our heads around it, as none of it seems real...we can't even believe it was two weeks ago today that we were flying out! The one lesson I can say that I hope to learn from is the power of friendship. I can't say I have been a great friend to a lot of people in my life, and you all have shown me what it means to be one. Your love, support, and care you have shown Laura throughout the last month has been awe inspiring. I could only hope to be the kind of friend that so many of you have shown to be to Laura. God bless you all.
By the way, her headache got a lot better today aside from the altitude changes in the plane, so hopefully the body chemistry change after last night took hold.
Wednesday, August 22, 2007
Coming Home!
The Kids Enjoyed Their Swim
Laura finally was able to clean her system out last night! Professor's wife, and assistant, was concerned about the lack of BM, so she suggested a suppository. After learning more about them on our way to Walgreen's, I realized Laura and I would be taking the intimacy of our relationship to a new level. :) When we returned from Walgreen's, I was tied up with an online fantasy football draft I have annually with my college buddies. During that time, at Jean's suggestion, Laura effectively used the "braille" technique to take care of it. All has passed, and she no longer looks 3 mos pregnant, which is not an exaggeration.
Continued prayers for a speedy recovery, disappearing headache, and brief radiation treatments are much appreciated, as well as those for Leah and her family (young woman hit by the baseball).
God bless and we can't wait to return to MI!
Tuesday, August 21, 2007
Coming Home Friday!
Mmmm Starbucks
We still have yet to find out when we are returning, so I will let everyone know when we do.
On Sunday, Professor informed us that he had an emergency surgery Monday morning on a young girl serving as the physical trainer for a college who was hit in the head by a baseball. They ran an MRI on her to make sure she was all right, even though she was not experiencing headaches, and found a malignant tumor. Talk about a blessing! When Laura, Doc, and Janet went for a walk late in the afternoon on Sunday, they bumped into the girl (20/21 yrs old) and her father. Understandably, she was very scared, but felt so much better after being able to talk to someone that was on the other side of it. Please pray that her surgery was successful and there are no lingering effects for the young woman, as I cannot help but be amazed that God had to line up a high speed foul ball to demonstrate his faithfulness in her. Our God is amazing!
No changes on the prayer request front, and we sincerely appreciate them.
Monday, August 20, 2007
She is a bit "stoned" from her medication, so she is not fully vibrant as usual. Directly to the left is a pic of us waiting for the shuttle as we were bringing her home from the hospital. Go figure, she gets a bit dolled up in nothing other than pink. We just finished a walk around the block...not too bad for brain surgery just a week ago!
The Other News
After the surgery last Monday, Professor told me the majority of the tumor looked like a Stage 2 (low grade) aside from one section. However, he couldn't confirm that until it passed through pathology (labs) to confirm. On Saturday, he informed Doc, Janet, and I that all was Stage 2 aside from one corner that was Stage 3 (high grade). The good news is that there were no cancerous cells in her blood work or spinal tap, so it might have just recently changed/mutated. For good measure, he recommended that we have her undergo some local radiation to ensure there are no Stage 3 cells lingering around. The MRI confirmed all of the tumor is out, but cells can hide. Laura was informed yesterday, and she didn't blink an eye. She wants to get this finished and move on with life...a trooper to put it lightly. We are waiting to schedule an appointment with the Professor either later today, but most likely tomorrow. He said the radiation could be administered in Grand Rapids/MI (thank you to the leadership in GR for developing a life sciences economy so this is available locally). He said this is not something to worry about, as it is a preventative measure, and the tumor was found and removed in very short order, therefore potentially getting it out before more of the tumor mutated. Praise God!! We look forward to learning more when we meet with him next.
Prayer Requests
Please pray for safe, comfortable treatments of radiation, disolving headache, and a less retentive van for the kids. Thanks again for all of your support and prayers, it is a true blessing to have so many loving friends. God Bless
Sunday, August 19, 2007
Back at the Hotel!
After the move, Laura is resting in the bedroom watching TV...though I was giving her grief for watching HSN, which she replied that they were cooking her yummy food (Wolfgang Puck was selling his stuff...and the prime rib looked great!). When Doc and Janet return from lunch, she will get to take a much needed shower...lover her to pieces, but she's getting ripe!
I am sure she will reach out later today, as will I as there is more news to share. Off to the pharmacy I go!
Saturday, August 18, 2007
She Speaks!
Not much more to write than what Chad has already. I ate well today. Lots of fruit and prunes (yuck!). Dad made me some salmon and wild rice and delivered it to the hospital. It was awesome and the closest thing to real food I've had in days. I am excited to get out of here and back to the hotel. Very excited to wash my hair/shower and get these compression boots off...they said I have to wear the hose for awhile.
Someone has already spoken for getting to be the one to adorne the little patch of hair on my right side with pink beads...so don't everyone fight over that! My sister sent me some beautiful scarves to hide the war wounds, which I will be wearing for awhile, I'm sure. I don't think my hair will cover it that easily, we'll see. I'm not too concerned. I feel totally blessed that he got the tumor out and that I have all my faculties about me. I have a lot to be thankful for. OK, I think that will be it for tonight. Thanks for all the continued prayers for my complete recovery and all the love I know is being sent our way.
A Great Night's Rest
Friday, August 17, 2007
Exciting News!
Ok, here is the exciting news- It is possibile that they are going to release her to the hotel tomorrow so to get her out of the hospital and into a more comfortable environment. How long we will be there, I am unsure. I am excited and scared at the same time to get her out of here.
Please pray for the "kids to unclick their seatbelts" and for that to allow her headache to disappear for a more comfortable recovery. Thanks for the prayers and support! We hope to see you back in GR soon!
Thursday, August 16, 2007
What would you do for a Klondike bar?
Her sense of humor is definitely in tact as she "squeezed the buns" as she likes to put it during a standing hug after her walk. Then, after explaining to Doc the hotel has ice cream treats such as Klondike bars you can buy, she asked, "What would you do for a Klondike bar? Would you get a brain tumor removed?" I can't tell you what it feels like to see her with a smile on and flashing around that sweet personality we all love.
Her headache is pretty rough still, and has to take codeine to put some limits on it, as it hit a 8 out of 10 on the pain scale today. As many of you know, she is not keen on medicines and pain killers. She is being so strong throughout this recovery process, I know I would be whining something awful.
Doc and Janet really stepped up today by being here when I went back to the hotel to rest. The lack of sleep finally caught up with me today. After getting what I thought was a reasonable amount of rest last night, I returned to the hotel this morning to recharge. Even though I didn't feel very tired, Janet and I thought it would be wise to grab a short nap around 8:30/9:00 AM... I woke up at 2:00 PM. I guess my body wanted more sleep than I thought, and since I woke up in the exact position I laid down in, it was much needed. Many friends who have supported family in the hospital have encouraged me to take care of myself, which I especially took to heart so to provide Laura heartful, caring support, not grouchy, tired attendance in her room. My college roommate, Tim, really made a point of this, as he and his wife Kathy had a similar situation a couple of years ago when their then 2 yr old boy, Max, had a tumor/mass removed from his brain. Thanks Tim.
If she is feeling up to it, Laura might post her own entry again tomorrow. She texted Jean a thank you for the cookies, so she is becoming more active and wanting to do a little more all of the time.
She just said that she needs a STAT OMM consult...
Prayer Request
Continue to pray for a speedy, comfortable, pain-free recovery and specifically for the headache to subside. I can't believe I am going to put this on here, but I don't want to miss out on any power of prayer for her...she also needs to "drop the kids off at the pool." She hasn't since the surgery, and they think that might be part of the problem with the headache. Here's to hoping I don't end up in the hospital shortly for posting that...
God bless, and thanks so much for all the love and support everyone has shown.
Wednesday, August 15, 2007
A Walk Down the Hall
She did find a berry smoothie concoction an easier way of stomaching the soy milk rather than drinking it straight. She left a little, and it was pretty tasty.
She is resting soundly right now, and hope to see her do more of the same throughout the night.
Sending Stuff
People are asking about sending goodies, and I want to first say this is very generous and much appreciated. However, if you would like Laura to be able to enjoy them, would it be all right to have things sent to our house once we return home? Laura's eye's are shut 99% of the time right now and will be able to enjoy them more at home as we would likely have to leave them behind. I hope that's all right, I just want the person they are intended for to be able to enjoy them!
A Low Key Day
Just as I was finishing the prior paragraph, the nurse came in and we got Laura to keep down about 6 oz of soy milk to give her strength. She then got up to walk out of the room and about 20 ft down the hall and back! Her nausea subsided, and did very well getting there and back. A little wobbly due the to medication, but that is to be expected. Praise God! We are going to need to be a little more aggressive with feeding her, as I could tell very quickly the difference the little bit of soy milk made.
Professor stopped by briefly and said things are progressing well, and we are going to start a more aggressive "feeding campaign" to build up her strength so her body can recover.
I would take a picture of her and post it, but I am not so sure I wouldn't be in the hospital as soon as her strength comes back. The gowns aren't exactly at Laura's level of fashion, and the ice pack on the head doesn't make for a very attractive hat. She is sleeping soundly after the walk while listening to some Brandon Heath (new Christian artist...album is great).
Your continued prayers and support are great and know they are felt.
Now that I am making sense again...
Professor said this morning she will likely be released to go home on Saturday, which is amazing. We will be playing it by ear, but that is what he is thinking.
Her headache continues to be an issue, and she had a little more codeine to ease her pain so to rest more soundly. She is doing so now, and we ask that people continue to pray her headaches recede soon.
God Bless,
Chad
Tuesday, August 14, 2007
By the Way, Family is Awesome
After flying back Monday, they drove 8+ hrs from KC to Little Rock and picked up my sister and nephew along the way. They arrived in Little Rock this morning at 12:45 AM. They have been great support helping Doc and Janet "behind the scenes" as laundry gets done, runs to Wild Oats for fresh fruit for Laura are expedited quickly, and comic relief is instantly available via Owen. Just to clarify, Owen is above right, and Kelly is above left.
Laura's movements in the just the last hour have become much more crisp. So cool. He works fast.
Rest, Sweet Rest
I am here for the evening, as they want 24 hour supervision and support the first night out of the higher level recovery area. The RN's have been great. It has been a learning experience to remember to focus on the little details...they make a big difference. I must admit, that is area of weakness for me.
Prayer Request
Continued relief from headache pain and for it to be gone for good when she awakes tomorrow morning. Also, she has yet to be able to eat much, so pray her nausea also disappears and her appetite and ability to hold food down return. We are so grateful for everyone's support and prayers, I cannot put it to words.
Good Night and God Bless You All,
Chad
Walking...No Problem
Kind of funny...I discussed with our nurse Laura's gluten allergy and sensitivity to dairy, and that a fruit plate would suffice as a meal. What did they send? Two popsicles and some jello. That's just funny. They have it straightened out now, but how does anyone in a hospital consider that to be a nutritious option? I can't help but laugh.
Since the walk to the bathroom, she has been sleeping soundly aside from the bites of gourmet banana pudding and intermittent sips of water. Continued prayers for relief from her headache are much appreciated. No pain, no pain...
Sitting With Her
She is very happy to be able to drink water today as the oxygen mask really dried her mouth out yesterday, which we could tell during our visits. She has yet to have an appetite, but Professor is not worried about that. She is resting now as they gave her some codeine for her headache.
The only lingering issue at this point is her headache, so that makes for a great prayer request. Please pray that the headache disappears for good, allowing her body to focus on recovery in a very comfortable state without pharmaceutical/herbal assistance. I know she would like nothing more than comfort during recovery she can return home soon.
As I sit here in this quiet room with her, I cannot put into words what your prayer, blog comments, and notes do to provide us strength through Him. I am so humbled by this, if for no one else. it is bringing me so close to Him, for without Him, I would be an absolute mess right now. Thanks again, and I will update throughout the day as things progress.
Morning Third Party Update
The Good News
She was alert, moving all extremities, talking, and has been released to a regular recovery room! Praise Him! They are calling me as soon as she returns from the MRI so we can visit her for another 10 minutes. As soon as I have more to report, it will hit the blob.
Monday, August 13, 2007
Last Visit of the Night
Doc, Janet and I left to grab some dinner as we were informed we would be allowed to see her again at 8:00 PM for the final visit of the night. Speaking of dinner, I am hoping a Pei Wei comes to Grand Rapids soon, it's a really good younger brother of PF Chang's and has a gluten free menu. I digress...by the time we returned at 8:00, she had moved both her left arm and leg on her own! I have to admit I was very relieved, for loss of motor function was not something I had given enough weight in my mind and prayers. Just as important, she was much more alert! She knew we were there, made eye contact, and tried to communicate verbally. She was trying to communicate, but was too heavily sedated. She was nodding to my questions, and continually giving my hand little squeezes as a way of communicating. It was phenomenal. While it ripped at my heart to have to leave her alone for the night, she was so exhausted the last few minutes (of a total 12 minutes), she couldn't keep her eyes open any longer. She is going to have an MRI tomorrow morning early to confirm they removed all of the tumor, and we will be able to see her again at 9 AM. I can't wait.
The comments on the blog are great, thanks so much for the continued love and support. The hotel we are staying in feels as though there are angels at every corner, as everyone here is here to be treated for something. The little acts of kindness provided by the front desk, shuttle drivers (Lenny is great), and the let alone the sweet people at the hospital make the entire experience one that reflects God's power when people are in need of Him. Love you all,
Chad
New Prayer Request
Prayer Request:
She has yet to move her left side, which is but an observation at this point and has not yet moved to the level of concern. She consistently migrated her eyes and attention toward her right side, so we stayed on that side so she wouldn't think/try too hard. We were told that could create nausea for her. The doctor and nurses were not concerned as it simply takes different people different amounts of time for the hemisphere of the brain operated on to "wake up."
If our prayer force out there would pray that her left side provide the doctors some good feedback, we would be grateful. Due to her medical expertise, I do not want her to overhear us speaking about it and have her start worrying, especially in the cloudy state she is in at this point. She is prone to worrying, and I don't want anything but positive thoughts running through that cute little head. Please pray for full, speedy, painless recovery for all nervous functions. She of all people I know deserves it.
Tales from the Lounge...
Professor, as Dr. Yasargil prefers to be called, recently stopped by to let us know the CT Scan looked normal. Also, he sees no remnants of the tumor. God rocks.
They just called out to let us visit Laura, gotta run.